{"id":5237,"date":"2023-03-27T05:11:11","date_gmt":"2023-03-27T03:11:11","guid":{"rendered":"https:\/\/www.jphres.org\/?p=5237"},"modified":"2023-04-02T14:18:22","modified_gmt":"2023-04-02T12:18:22","slug":"culturally-and-linguistically-diverse-populations-in-medical-research-perceptions-and-experiences-of-older-italians-their-families-ethics-administrators-and-researchers","status":"publish","type":"page","link":"https:\/\/www.jphres.us.com\/index.php\/jphres\/article\/view\/667\/","title":{"rendered":"Culturally and linguistically diverse populations in medical research: perceptions and experiences of older Italians, their families, ethics administrators and researchers"},"content":{"rendered":"<div class=\"item doi\"><span class=\"value\"><a href=\"https:\/\/doi.org\/10.4081\/jphr.2016.667\">https:\/\/doi.org\/10.4081\/jphr.2016.667<\/a><\/span><\/div>\n<ul class=\"item authors\">\n<li><span class=\"name\"><strong>Robyn Woodward-Kron<\/strong><br \/>\n<\/span><span class=\"affiliation\">University of Melbourne, Australia.<\/span><\/li>\n<li><span class=\"name\"><strong>Jo-anne Hughson<\/strong><br \/>\n<\/span><span class=\"affiliation\">University of Melbourne, Australia.<\/span><\/li>\n<li><span class=\"name\"><strong>Anna Parker<\/strong><br \/>\n<\/span><span class=\"affiliation\">University of Melbourne, Australia.<\/span><\/li>\n<li><span class=\"name\"><strong>Agnese Bresin<\/strong><br \/>\n<\/span><span class=\"affiliation\">University of Melbourne, Australia.<\/span><\/li>\n<li><span class=\"name\"><strong>John Hajek<\/strong><br \/>\n<\/span><span class=\"affiliation\">University of Melbourne, Australia.<\/span><\/li>\n<li><span class=\"name\"><strong>Ute Knoch<\/strong><br \/>\n<\/span><span class=\"affiliation\">University of Melbourne, Australia.<\/span><\/li>\n<li><span class=\"name\"><strong>Tuong Dien Phan<\/strong><br \/>\n<\/span><span class=\"affiliation\">University of Melbourne; St. Vincent\u2019s Hospital, Melbourne, Australia.<\/span><\/li>\n<li><span class=\"name\"><strong>David Story<\/strong><br \/>\n<\/span><span class=\"affiliation\">University of Melbourne, Australia.<\/span><\/li>\n<\/ul>\n<p><strong>ABSTRACT<\/strong><\/p>\n<p><em>Background<\/em>. Low-participation of culturally and linguistically diverse (CALD) patients in medical research remains a problem in migrant and refugee destination countries such as Australia. The aims of this study were to explore i) CALD persons\u2019 perceptions and experiences of the medical system and medical research, in this case, older Italian Australians; and ii) the views of research professionals on CALD patient participation in medical research.<br \/>\n<em><br \/>\nDesign and Methods.<\/em>\u00a0A qualitative study was conducted in Melbourne, Australia, in 2015 utilising in-depth interviews and focus groups with four stakeholder groups: older Italian Australians (n=21); adult children of older Italian Australians (n=10); hospital Human Research Ethics Committee administrators (n=4); and clinical researchers (n=4). The data were analysed for content and thematic analysis.<br \/>\n<em><br \/>\nResults<\/em>. Themes for the CALD and family group were getting by in medical interactions; receptivity to medical research: testing the waters; and, receptivity to technology for support: passive versus active. Themes for the researcher and HREC groups about CALD patient participation in research were: exclusion; cultural factors; and e-consent.<br \/>\n<em><br \/>\nConclusions<\/em>. Our findings from four stakeholder perspectives and experiences confirm that there were considerable cultural, linguistic, and resourcing barriers hindering the participation of older Italian-Australians in medical research. Furthermore, our findings showed that in this study setting there were few enabling strategies in place to address these barriers despite the national ethics guidelines for equitable participation in research. The findings informed the creation of a multimedia tool whose purpose is to address and improve representation of CALD groups in clinical research.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>https:\/\/doi.org\/10.4081\/jphr.2016.667 Robyn Woodward-Kron University of Melbourne, Australia. Jo-anne Hughson University of Melbourne, Australia. Anna Parker University of Melbourne, Australia. Agnese Bresin University of Melbourne, Australia. John Hajek University of Melbourne, Australia. Ute Knoch University of Melbourne, Australia. Tuong Dien Phan University of Melbourne; St. Vincent\u2019s Hospital, Melbourne, Australia. David Story University of Melbourne, Australia. ABSTRACT &#8230; <a title=\"Culturally and linguistically diverse populations in medical research: perceptions and experiences of older Italians, their families, ethics administrators and researchers\" class=\"read-more\" href=\"https:\/\/www.jphres.us.com\/index.php\/jphres\/article\/view\/667\/\" aria-label=\"More on Culturally and linguistically diverse populations in medical research: perceptions and experiences of older Italians, their families, ethics administrators and researchers\">Read more<\/a><\/p>\n","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"open","ping_status":"open","template":"","meta":{"footnotes":""},"class_list":["post-5237","page","type-page","status-publish"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Culturally and linguistically diverse populations in medical research: perceptions and experiences of older Italians, their families, ethics administrators and researchers - Journal of Public Health Research<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.jphres.us.com\/index.php\/jphres\/article\/view\/667\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Culturally and linguistically diverse populations in medical research: perceptions and experiences of older Italians, their families, ethics administrators and researchers - Journal of Public Health Research\" \/>\n<meta property=\"og:description\" content=\"https:\/\/doi.org\/10.4081\/jphr.2016.667 Robyn Woodward-Kron University of Melbourne, Australia. Jo-anne Hughson University of Melbourne, Australia. Anna Parker University of Melbourne, Australia. Agnese Bresin University of Melbourne, Australia. John Hajek University of Melbourne, Australia. Ute Knoch University of Melbourne, Australia. Tuong Dien Phan University of Melbourne; St. Vincent\u2019s Hospital, Melbourne, Australia. David Story University of Melbourne, Australia. ABSTRACT ... 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