{"id":4863,"date":"2023-03-27T00:02:54","date_gmt":"2023-03-26T22:02:54","guid":{"rendered":"https:\/\/www.jphres.org\/?p=4863"},"modified":"2023-04-02T14:20:30","modified_gmt":"2023-04-02T12:20:30","slug":"medical-records-confidentiality-and-public-health-research-two-values-at-stake-an-italian-survey-focus-on-individual-preferences","status":"publish","type":"page","link":"https:\/\/www.jphres.us.com\/index.php\/jphres\/article\/view\/401\/","title":{"rendered":"Medical records confidentiality and public health research: two values at stake? An italian survey focus on individual preferences"},"content":{"rendered":"<div class=\"item doi\"><span class=\"value\"><a href=\"https:\/\/doi.org\/10.4081\/jphr.2015.401\">https:\/\/doi.org\/10.4081\/jphr.2015.401<\/a><\/span><\/div>\n<ul class=\"item authors\">\n<li><span class=\"name\"><strong>Virgilia Toccaceli<\/strong><br \/>\nGenetic Epidemiology Unit, National Centre of Epidemiology, Surveillance and Health Promotion, Italian National Institute of Health, Rome, Italy.<\/span><\/li>\n<li><span class=\"name\"><strong>Corrado Fagnani<\/strong><br \/>\n<\/span><span class=\"affiliation\">Genetic Epidemiology Unit, National Centre of Epidemiology, Surveillance and Health Promotion, Italian National Institute of Health, Rome, Italy.<\/span><\/li>\n<li><span class=\"name\"><strong>Maria Antonietta Stazi<\/strong><br \/>\n<\/span><span class=\"affiliation\">Genetic Epidemiology Unit, National Centre of Epidemiology, Surveillance and Health Promotion, Italian National Institute of Health, Rome, Italy.<\/span><\/li>\n<\/ul>\n<div class=\"item abstract\">\n<h3 class=\"label\">ABSTRACT<\/h3>\n<p>In a time when Europe is preparing to introduce new regulations on privacy protection, we conducted a survey among 1700 twins enrolled in the Italian Twin Register about the access and use of their medical records for public health research without explicit informed consent. A great majority of respondents would refuse or are doubtful about the access and use of hospital discharge records or clinical data without their explicit consent. Young and female individuals represent the modal profile of these careful people. As information retrieved from medical records is crucial for progressing knowledge, it is important to promote a better understanding of the value of public health research activities among the general population. Furthermore, public opinions are relevant to policy making, and concerns and preferences about privacy and confidentiality in research can contribute to the design of procedures to exploit medical records effectively and customize the protection of individuals\u2019 medical data.<\/p>\n<\/div>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>https:\/\/doi.org\/10.4081\/jphr.2015.401 Virgilia Toccaceli Genetic Epidemiology Unit, National Centre of Epidemiology, Surveillance and Health Promotion, Italian National Institute of Health, Rome, Italy. Corrado Fagnani Genetic Epidemiology Unit, National Centre of Epidemiology, Surveillance and Health Promotion, Italian National Institute of Health, Rome, Italy. Maria Antonietta Stazi Genetic Epidemiology Unit, National Centre of Epidemiology, Surveillance and Health Promotion, &#8230; <a title=\"Medical records confidentiality and public health research: two values at stake? An italian survey focus on individual preferences\" class=\"read-more\" href=\"https:\/\/www.jphres.us.com\/index.php\/jphres\/article\/view\/401\/\" aria-label=\"More on Medical records confidentiality and public health research: two values at stake? An italian survey focus on individual preferences\">Read more<\/a><\/p>\n","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"open","ping_status":"open","template":"","meta":{"footnotes":""},"class_list":["post-4863","page","type-page","status-publish"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Medical records confidentiality and public health research: two values at stake? An italian survey focus on individual preferences - Journal of Public Health Research<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.jphres.us.com\/index.php\/jphres\/article\/view\/401\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Medical records confidentiality and public health research: two values at stake? An italian survey focus on individual preferences - Journal of Public Health Research\" \/>\n<meta property=\"og:description\" content=\"https:\/\/doi.org\/10.4081\/jphr.2015.401 Virgilia Toccaceli Genetic Epidemiology Unit, National Centre of Epidemiology, Surveillance and Health Promotion, Italian National Institute of Health, Rome, Italy. Corrado Fagnani Genetic Epidemiology Unit, National Centre of Epidemiology, Surveillance and Health Promotion, Italian National Institute of Health, Rome, Italy. Maria Antonietta Stazi Genetic Epidemiology Unit, National Centre of Epidemiology, Surveillance and Health Promotion, ... 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An italian survey focus on individual preferences - Journal of Public Health Research","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.jphres.us.com\/index.php\/jphres\/article\/view\/401\/","og_locale":"en_US","og_type":"article","og_title":"Medical records confidentiality and public health research: two values at stake? An italian survey focus on individual preferences - Journal of Public Health Research","og_description":"https:\/\/doi.org\/10.4081\/jphr.2015.401 Virgilia Toccaceli Genetic Epidemiology Unit, National Centre of Epidemiology, Surveillance and Health Promotion, Italian National Institute of Health, Rome, Italy. Corrado Fagnani Genetic Epidemiology Unit, National Centre of Epidemiology, Surveillance and Health Promotion, Italian National Institute of Health, Rome, Italy. Maria Antonietta Stazi Genetic Epidemiology Unit, National Centre of Epidemiology, Surveillance and Health Promotion, ... Read more","og_url":"https:\/\/www.jphres.us.com\/index.php\/jphres\/article\/view\/401\/","og_site_name":"Journal of Public Health Research","article_modified_time":"2023-04-02T12:20:30+00:00","twitter_card":"summary_large_image","twitter_misc":{"Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/www.jphres.us.com\/index.php\/jphres\/article\/view\/401\/","url":"https:\/\/www.jphres.us.com\/index.php\/jphres\/article\/view\/401\/","name":"Medical records confidentiality and public health research: two values at stake? 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